Comments on: That Crisis Point http://wellsoul.net/2006/08/that-crisis-point/ a woman's exploration of wellness & spirituality Fri, 09 Dec 2011 14:22:42 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: UU Soul http://wellsoul.net/2006/08/that-crisis-point/comment-page-1/#comment-3 UU Soul Wed, 23 Aug 2006 03:23:00 +0000 http://wellsoul.net/?p=3#comment-3 Thanks, Elizabeth :) Yes, it has been difficult to deal with the lack of understanding from both doctors and the general public. I did so much research that I was better informed than the doctors I was seeing. I suspected the Thoracic Outlet Syndrome early on, but the doctors were only familiar with Carpel Tunnel. I can remember waiting months for an appointment with a specialist only to have him send me out the door with a lecture comparing my situation to an athletes sore muscles. You can imagine how the average person's head spins when I mention my TOS & Fibro. They have no idea what I'm talking about.<br/><br/>I have met people who have lost relationships because their SO did not believe them. I was fortunate to have the moral support of my husband all these years. Neither of us had established careers when it started so it was rough going financially, but he was always there to help. I count myself lucky in many ways and hope my story can give some comfort to others. I know how much it meant to me to hear the stories at the RSI support group. It makes such a difference to hear your experience validated - especially when you are being made to doubt yourself by the doctor or others around you. Peace and good health ;) Thanks, Elizabeth :) Yes, it has been difficult to deal with the lack of understanding from both doctors and the general public. I did so much research that I was better informed than the doctors I was seeing. I suspected the Thoracic Outlet Syndrome early on, but the doctors were only familiar with Carpel Tunnel. I can remember waiting months for an appointment with a specialist only to have him send me out the door with a lecture comparing my situation to an athletes sore muscles. You can imagine how the average person’s head spins when I mention my TOS & Fibro. They have no idea what I’m talking about.

I have met people who have lost relationships because their SO did not believe them. I was fortunate to have the moral support of my husband all these years. Neither of us had established careers when it started so it was rough going financially, but he was always there to help. I count myself lucky in many ways and hope my story can give some comfort to others. I know how much it meant to me to hear the stories at the RSI support group. It makes such a difference to hear your experience validated – especially when you are being made to doubt yourself by the doctor or others around you. Peace and good health ;)

]]> By: Elizabeth http://wellsoul.net/2006/08/that-crisis-point/comment-page-1/#comment-2 Elizabeth Wed, 23 Aug 2006 02:14:00 +0000 http://wellsoul.net/?p=3#comment-2 Yikes. I'm so sorry to read about your struggles. I just posted on my blog about how difficult chronic illness can be and how difficult it is to work with doctors. I think it is so important to share your story so that others who are going through similar things know that they are not incompetent and it is not in their head. There are still so many misconceptions in the general public and medical community about chronic pain and illness. Someone just recently posted a comment informing me that fibromyalgia is a combination of depression and psychiatric issues. Ugggg. So upsetting. Although I hate to hear all the struggles you went through, it was nice to read about how you finally made progress. I look forward to reading more about your healing journey. Much Peace. Yikes. I’m so sorry to read about your struggles. I just posted on my blog about how difficult chronic illness can be and how difficult it is to work with doctors. I think it is so important to share your story so that others who are going through similar things know that they are not incompetent and it is not in their head. There are still so many misconceptions in the general public and medical community about chronic pain and illness. Someone just recently posted a comment informing me that fibromyalgia is a combination of depression and psychiatric issues. Ugggg. So upsetting. Although I hate to hear all the struggles you went through, it was nice to read about how you finally made progress. I look forward to reading more about your healing journey. Much Peace.

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